Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.
These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).
CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.
1 in 300 young people CRY tests will have a potentially life-threatening heart condition.
In 80% of cases of young sudden cardiac death there are no prior symptoms of a heart defect.
CRY believes cardiac screening should be available to all young people aged between 14 and 35.
CRY also works to guide and support families and close friends affected by YSCD. We provide information about what the coroner does and bereavement support, as well as help with NHS referrals and the procedures that usually follow a YSCD.
CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/medical-information.
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